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maroozio said:
ilovethesea said:
ilovethesea said:
Such_Saturation said:ilovethesea said:
I can tell you that drinking salty water gives you that kick
Such_Saturation said:
iLoveSugar said:
c093 said:iLoveSugar said:
Hello iLoveSugar! I've been having all of the same symptoms as you and some...I actually read some of your older posts by way of searching for answers on this board and google and couldn't believe how accurately you were describing what I have been going through.
Long story short-- followed prothyroid RP-inspired protocol via diet (no supplements except the odd aspirin. I tried a couple of the recommended things like pregnenolone and others, but could not afford them long term) for about 3 years. Had all kinds of improvement energy-wise and cognitively, which is the main reason I was interested to begin with. I haven't been perfect but definitely feeling the best in a long time (memory improvements, little anxiety and attention deficit) and good enough to get me through school. Fast-foward to about 8 months ago where I started having seemingly out of nowhere, the most intensely painful stomach pain that would wake me up out of a dead sleep. I actually panicked and found myself in the emergency room which turned out to be useless and pointless. Since then I have had such severe constipation along with passing mucus blood daily (sorry to be graphic!) and other very scary things...I somehow made it through the rest of the school year, but barely.
I still suffer daily now upper and low left quadrant pain (like right under my rib). Sometimes it moves to the right side or my back too.
I hve seen a couple of GI's. expensive and for the most part pointless. I have been in contact with RP who has been generous and shared some ideas on what I could try, but so far, I have not noticed dramatic changes.
One GI diagnosed me with SIBO and IBS-C which I guess is what happens when everything else is ruled out. I took a very expensive antibiotic that my insurance would not cover, and it seemed to work but the second the cylce was over, all of my symptoms returned thought the stomach/bowel pain seemed to be muted for a while. I even got desperate and tried yogurt, probiotics, and everything I have really avoided for the last 3 years, but symptoms stayed the same or ot worse. I have hyoscyamine for when I experience the pain (spasms) and RP said this is o.k. as it can be anti-inflammatory and as an anticholinergic can be helpful with my symptoms.
I still have yet to figure out the severe constipation thing which is worrisome as continuation of blood/mucus present when I do actually go makes me think I am setting myself up for some terrible things down the road.
I removed the possible allergens from my diet as Ray suggested, but still no real improvement. He did suggest keeping TSH very low can also be anti-inflammatory, so I am already taking NDT (just nutripak but I might order the one from Thailand) and some cynomel but not sure it is really doing much for my symptoms.
As there is a definite link between the gut and neurotransmitters and brain, he suggested the cyproheptadine for me, so I am trying to get a hold of it. However, I was reading randomly how reducing serotonin can be constipating in itself, so now I am really confused
I wish I had more help for you! I also cut out the raw carrot for now, definitely slows my already slow system down.
Cascara Sagrada did not work for me until over 72 hours later when I experienced the intense pain ever so I am not really going to try it again.
Tried aloe, senna, magnesium, all of the usual natural laxatives suspects, and they all work but very very delayed and give me pain when I finally do go.
Oddly enough, oatmeal (way over-cooked rolled oats) with coconut oil/butter is the only thing to make me consistently go without pain. I really don't like oats (would rather eat fruit or potatoes which I was successful with until this all started), but I have been because it seems to be the only thing working. I don't think it is the soluble fiber because I eat other things with that, plus out of desperation I also tried this soluble fiber recommended by one of my GI's, but it wasn't really effective and made my pain worse.
I am thinking maybe it is the beta-glucan in oats? I have been trying to search RP's opinion on beta-glucan but haven't been able to find it and I feel sorry to keeping bothering him as he has already been so generous with helping me sort through this.
But if that is what is working then I was thinking of trying something like this https://www.protherainc.com/prod/prodde ... ?id=K-GALC
instead of continuing to eat oats.
If I figure anything else out that works, I will let you know. Also, I should had my temps are always high and my pulse seems to be good. My thyroid panel came back normal (TSH .98, etc) but I know that isn't neccesarily a good indicator and pulse and temps can be more helpful.
Also, I should add, I am not losing weight but I am also not overweight.
I also am not stressed out as the GIs keep suggesting to me. I finished school for now and am in a good relationship and good job..and yet the pain and severe constipation persists. So who knows.
I literally feel your pain though! Hope this can be figured out for us!
