messtafarian
Member
- Joined
- Aug 18, 2013
- Messages
- 814
So I went to the doctor for a checkup to make sure I really didn't have very much wrong with me. A couple things have been bothering me lately but *mostly* what has been bugging me is what has been bothering me all along: NIGHT SWEATS AND HOT FLASHES. Everything else I could handle, but this was just miserable and unending and obviously connected to menopause because I had stopped menstruating.
But mid-2013 I was also having massive, horrid bleeding issues coinciding with perimenopause and also a goiter that had developed from chronic "hyperthyrodisim." I started to get worried about myself, started going to the doctor and then sort of got more and more worried, because I was diagnosed with hypertension also and of course ongoing iron deficiency anemia.
So then suddenly I was in this sort of "illness vortex." I tried this hot flash remedy called Amberen with great success but I was told by the manufacturer to STOP PROGESTERONE while taking it.
So by the beginning of November, I was getting horrible hot flashes again. Also my stomach was not acting right and there was this other, sort of worrisome tremor starting. "Internal weakness." I felt sick to my stomach, hot flashing, dizzy now and this place where I fell on my tailbone a couple years ago starts to ache ( JOINT PAIN???)I scour the internet, getting more and more freaked out. My doctor orders an ANA panel, which is positive, and HIGHLY RECOMMENDS a full GI scope ( upper and lower) to rule out " internal bleeding."
Now I am losing my mind. LUPUS?? SJOGRENS SYNDROME????WHAT IS IT, WHAT IS IT?
The positive ANA resulted in an expanded panel that showed a positive "anti-ssb". Okay NOW I had something to go on, and I'm now just *destroying* the internet trying to figure this out. Part of the reason I was on the internet was because my doctor immediately referred me to a rheumatologist which now meant I was going to be going through all this "autoimmunity testing" which is not only expensive but depressing and frightening and I want absolutely nothing to do with it.
About a week after the positive ssb panel, I felt something happening in my jaw, and then I found a lymph node. I was kind of pushing on it, poking at it, and then i felt something burst inside my jaw. Next thing that happens is suddenly my parotid gland is immense and I can barely chew anything because of the pain when I salivate.
That lasts one day. Then I have a sore throat, itchy eyes, a runny nose, I am dizzy...etc. And I am reading all this stuff online about how sjogrens syndrome causes multiple organ involvement, and it could blossom into Lupus, unless I had multiple sclerosis or lymphoma or colon cancer or HIV or diabetes. My stomach is wrecked. I am sneezing and coughing, my eyes are watering.
I AM DYING.
All right, so now it's day fifteen of my disease. I have restarted progesterone and suddenly...the hot flashes are gone. I have a cold or an allergy or something and my stomach is still bothering me but suddenly it is dawning on me that what people are taking for Lupus is something called Plaquenil, a quinine drug that was developed for Malaria.
A virus.
What virus?
Now I'm searching " anti-ssb and virus".
I find out I have AIDS.
NO...wait...
Now more Sjogrens Syndrome. My teeth are going to fall out. My hair is going to fall out. I have haemolytic anemia.
Stop, stop, wait...ok...HCV...no...malaria...probably not..coxsackie virus...maybe...hm.
" Anti-ssb and Epstein-Barr."
http://www.clinexprheumatol.org/article.asp?a=3532
Could I have possibly *had* Epstein-Barr when I got my blood drawn? Could I possibly have iron deficiency because I've been bleeding massively for years and eat an iron-minimizing diet plus lots of cheese and coffee? Could my stomach be wrecked because I have a virus and I have now scared myself to death?
Hm.
But mid-2013 I was also having massive, horrid bleeding issues coinciding with perimenopause and also a goiter that had developed from chronic "hyperthyrodisim." I started to get worried about myself, started going to the doctor and then sort of got more and more worried, because I was diagnosed with hypertension also and of course ongoing iron deficiency anemia.
So then suddenly I was in this sort of "illness vortex." I tried this hot flash remedy called Amberen with great success but I was told by the manufacturer to STOP PROGESTERONE while taking it.
So by the beginning of November, I was getting horrible hot flashes again. Also my stomach was not acting right and there was this other, sort of worrisome tremor starting. "Internal weakness." I felt sick to my stomach, hot flashing, dizzy now and this place where I fell on my tailbone a couple years ago starts to ache ( JOINT PAIN???)I scour the internet, getting more and more freaked out. My doctor orders an ANA panel, which is positive, and HIGHLY RECOMMENDS a full GI scope ( upper and lower) to rule out " internal bleeding."
Now I am losing my mind. LUPUS?? SJOGRENS SYNDROME????WHAT IS IT, WHAT IS IT?
The positive ANA resulted in an expanded panel that showed a positive "anti-ssb". Okay NOW I had something to go on, and I'm now just *destroying* the internet trying to figure this out. Part of the reason I was on the internet was because my doctor immediately referred me to a rheumatologist which now meant I was going to be going through all this "autoimmunity testing" which is not only expensive but depressing and frightening and I want absolutely nothing to do with it.
About a week after the positive ssb panel, I felt something happening in my jaw, and then I found a lymph node. I was kind of pushing on it, poking at it, and then i felt something burst inside my jaw. Next thing that happens is suddenly my parotid gland is immense and I can barely chew anything because of the pain when I salivate.
That lasts one day. Then I have a sore throat, itchy eyes, a runny nose, I am dizzy...etc. And I am reading all this stuff online about how sjogrens syndrome causes multiple organ involvement, and it could blossom into Lupus, unless I had multiple sclerosis or lymphoma or colon cancer or HIV or diabetes. My stomach is wrecked. I am sneezing and coughing, my eyes are watering.
I AM DYING.
All right, so now it's day fifteen of my disease. I have restarted progesterone and suddenly...the hot flashes are gone. I have a cold or an allergy or something and my stomach is still bothering me but suddenly it is dawning on me that what people are taking for Lupus is something called Plaquenil, a quinine drug that was developed for Malaria.
A virus.
What virus?
Now I'm searching " anti-ssb and virus".
I find out I have AIDS.
NO...wait...
Now more Sjogrens Syndrome. My teeth are going to fall out. My hair is going to fall out. I have haemolytic anemia.
Stop, stop, wait...ok...HCV...no...malaria...probably not..coxsackie virus...maybe...hm.
" Anti-ssb and Epstein-Barr."
http://www.clinexprheumatol.org/article.asp?a=3532
Could I have possibly *had* Epstein-Barr when I got my blood drawn? Could I possibly have iron deficiency because I've been bleeding massively for years and eat an iron-minimizing diet plus lots of cheese and coffee? Could my stomach be wrecked because I have a virus and I have now scared myself to death?
Hm.