Hello,
Recently my brother has been diagnosed with muscular dystrophy, specifically myotonic dystrophy type 1. He first noticed weakness in his extremities and an inability to release his grip at normal speed. He is a 32 year old male. Through communications with some members here it seems cortisol and estrogen might be involved. Below is what he's been taking over the past year or so to see if things could improve... which they have: digestion has improved, vitamin D levels went way up (from 14 ng/mL to 44 ng/mL) cholesterol has increased from 120 to 198 and he's gained some healthy weight). I am also posting his recent blood labs. We're hoping to reverse all symptoms and if anyone had any insights or advice that would be awesome and we would be really grateful. Thank you.
Supplementation:
Here are his recent blood labs:
Recently my brother has been diagnosed with muscular dystrophy, specifically myotonic dystrophy type 1. He first noticed weakness in his extremities and an inability to release his grip at normal speed. He is a 32 year old male. Through communications with some members here it seems cortisol and estrogen might be involved. Below is what he's been taking over the past year or so to see if things could improve... which they have: digestion has improved, vitamin D levels went way up (from 14 ng/mL to 44 ng/mL) cholesterol has increased from 120 to 198 and he's gained some healthy weight). I am also posting his recent blood labs. We're hoping to reverse all symptoms and if anyone had any insights or advice that would be awesome and we would be really grateful. Thank you.
Supplementation:
- Every evening for the past year he's been taking 15 mg of progesterone and 5 mg of DHEA orally.
- In the last month he's added an additional 15 mg of progesterone and 5 mg DHEA in the morning. So that is a total of 30 mg of progesterone and 10 mg DHEA a day, split in two. Both orally.
- 50 mg of pregnenolone daily orally.
- Small amounts of B vitamins orally from supplement from IdeaLabs
- 350 mg of niacinamide daily
- 6,000 IU's of vitamin D a day or lay on in the sun for 30 min
- 2 mg of methylene blue orally daily.
Here are his recent blood labs:
- Vitamin D = 44 ng/mL (30-100 ng/mL)
- Carbon Dioxide = 30 mmol/L (20-32 mg/dL)
- Calcium = 10.1 mg/dL (8.6-10.3 mg/dL)
- Phosphate = 3.4 mg/dL (2.5-4.5 mg/dL)
- Prolactin = 8.1 ng/mL (2.0-18.0 ng/mL)
- Parathyroid Hormone = 34 pg/mL (14-64 pg/mL)
- Total Cholesterol = 198 mg/dL (<200 mg/dL)
- Total testosterone = 620 ng/dL (250-857ng/dL)
- TSH = 2.65 mIU/L (0.4-4.5 mIU/L)
- DHT = 62 ng/dL (12-65 ng/dL)
- DHEA = 145 mcg/dL (106-464 mcg/dL)
- A.M. Cortisol = 19.6 mcg/dL (4.0-22.0 mcg/dL)
- P.M. Cortisol = 11.6 mcg/dL (3.0-17.0 mcg/dL)
- Triglycerides = 197 mg/dL (<150 mg/dL) Marked by the lab as too high
- LDL Cholesterol = 120 mg/dL (<100 mg/dL) Marked by the lab as too high
- Glucose = 100 mg/dL (65-99 mg/dL) Marked by the lab as too high
- Potassium = 5.7 mmol/L (3.5-5.3 mmol/L) Marked by the lab as too high