D
Dan77
Guest
Age 24, male, Canada.
I've been suffering with insatiable hunger, depersonalization, blurry vision, IBS (diagnosed), Cholinergic Urticaria (diagnosed), extreme ADHD symptoms (not diagnosed), insomnia, and on and off memory problems for years now. This is not a "Oh, just change your diet, and take X, Y, and Z supplements, and you'll be fine". Something is seriously wrong with my physiology, genetics, or body. Momentarily forgetting where I live when driving back home and being dizzy/blurry all the time with constant hunger is destroying my life and I cannot take this anymore.
Medical tests I've done:
MRI- Normal
Sleep test- Normal
EEG- Normal
Blood glucose- Normal. Tested 200+ times at home and 10 times In lab.
23andMe- I don't have the main genetic diseases shown, though I am a carrier for Fructose intolerance and Biotinidase deficiency, but I am only a carrier and thus do not have either disease, so my symptoms cannot correlate to that. I've checked hundreds of SNP's on SNPEDIA for diseases involving Dopamine, Serotonin, hormones, and more... Nothing bad (that I have seen, at least)
Treated for H-Pylori many years ago: No change at all
Blood panel (Iron, B12, Thyroid, testosterone, cholesterol, prolactin)- Normal every year
Celiac disease- Negative
Vitamin and Minerals- Normal
Activities/foods supplements I tried that make me feel a bit better, but does not cure anything:
Coffee- (obviously)
Eating high protein every 2 hours- Improves my symptoms greatly, the only reliable thing that somewhat works, but it's only a 30% reduction in symptoms.
Creatine- Helps brain fog by... 10-20%? No cure at all, but at least I get a little relief.
DHA- Helps a bit with memory, perhaps 10%
NAC- Memory, 10%
Excessive exercise- Helps a bit by lowering my appetite, but does not "cure" anything, in the same way exercise could not cure diabetes for example (even if it makes you feel better, being unrelated to disease)
Winter swimming- Swimming in freezing temperatures between 0 and -20 to "shock my system" has not done anything. Feels like a caffeine high, but my problems are still there.
What I've tried that have no effects and/or makes me feel worse:
High Carb- Makes everything 10x worse, unless I hover around low carb-ish 70-90 G which is alright.
Practically every supplement recommended here: Taurine, Glycine, Niacinamide, Aspirin, Thyroid glandular/hormones- No effect and/or makes me worse.
100's of supplements ranging from B-Complex to Lecithin to zinc to all types of herbs to individual amino acids to....- Nothing.
PUFA avoidance- No difference. at all. My symptoms are a lot better off eating tons of fish and eating almonds. This is not a pufa or dietary issue...
My diet: Fish, beef and chicken, Balkan yogourt and milk, fruit, beans, and coffee. It's basically the perfect diet. I eat 10x better than the average person, yet even a drug addict does not have any of my symptoms.
Cognitive Testing: I've done multiple Mensa ranked online IQ tests (Norway, Luxemburg, Denmark) + clinical Psychometric IQ test (online), both of which (supposedly) accurately correlate to in person testing, created by Mensa members and psychologists - My IQ is consistently around 110 to 130, SD 15. Variations are likely a result of 1) different tests 2) health issues affecting my thinking. Despite that, my depersonalization and brain fog make me forget repeatedly and I never feel "real". Everything is a blur. I forget what happened 3 seconds ago. I can NEVER concentrate. Ever. My attention does not exist. Driving down the same road feels "unfamiliar to me", even though I could draw it from memory, I feel "distant" from it, somehow.
WPM: My fastest typing score (on the computer/keyboard) was 91 words per minute (two finger typing), but I average 75 normally writing, so my processing speed seems... Great. Yet, my memory or recognition of memories is failing.
The worse symptoms are the ones that affect my cognitive health. I could live with IBS, urticaria, and insatiable hunger... but the cognitive issues are destroying my life.
______________________________________________________________________________________________________________________________________________________________________________________
TL;DR: I don't know what to do anymore... I have a $10,000 budget for my health and don't know what other tests or therapies to try... My life is spiraling down, I cannot live like this anymore, suffering day to day for years, please someone recommend something; anything new for me to try.
I'm a desperate man. Being at rock bottom is a compliment.
I've been suffering with insatiable hunger, depersonalization, blurry vision, IBS (diagnosed), Cholinergic Urticaria (diagnosed), extreme ADHD symptoms (not diagnosed), insomnia, and on and off memory problems for years now. This is not a "Oh, just change your diet, and take X, Y, and Z supplements, and you'll be fine". Something is seriously wrong with my physiology, genetics, or body. Momentarily forgetting where I live when driving back home and being dizzy/blurry all the time with constant hunger is destroying my life and I cannot take this anymore.
Medical tests I've done:
MRI- Normal
Sleep test- Normal
EEG- Normal
Blood glucose- Normal. Tested 200+ times at home and 10 times In lab.
23andMe- I don't have the main genetic diseases shown, though I am a carrier for Fructose intolerance and Biotinidase deficiency, but I am only a carrier and thus do not have either disease, so my symptoms cannot correlate to that. I've checked hundreds of SNP's on SNPEDIA for diseases involving Dopamine, Serotonin, hormones, and more... Nothing bad (that I have seen, at least)
Treated for H-Pylori many years ago: No change at all
Blood panel (Iron, B12, Thyroid, testosterone, cholesterol, prolactin)- Normal every year
Celiac disease- Negative
Vitamin and Minerals- Normal
Activities/foods supplements I tried that make me feel a bit better, but does not cure anything:
Coffee- (obviously)
Eating high protein every 2 hours- Improves my symptoms greatly, the only reliable thing that somewhat works, but it's only a 30% reduction in symptoms.
Creatine- Helps brain fog by... 10-20%? No cure at all, but at least I get a little relief.
DHA- Helps a bit with memory, perhaps 10%
NAC- Memory, 10%
Excessive exercise- Helps a bit by lowering my appetite, but does not "cure" anything, in the same way exercise could not cure diabetes for example (even if it makes you feel better, being unrelated to disease)
Winter swimming- Swimming in freezing temperatures between 0 and -20 to "shock my system" has not done anything. Feels like a caffeine high, but my problems are still there.
What I've tried that have no effects and/or makes me feel worse:
High Carb- Makes everything 10x worse, unless I hover around low carb-ish 70-90 G which is alright.
Practically every supplement recommended here: Taurine, Glycine, Niacinamide, Aspirin, Thyroid glandular/hormones- No effect and/or makes me worse.
100's of supplements ranging from B-Complex to Lecithin to zinc to all types of herbs to individual amino acids to....- Nothing.
PUFA avoidance- No difference. at all. My symptoms are a lot better off eating tons of fish and eating almonds. This is not a pufa or dietary issue...
My diet: Fish, beef and chicken, Balkan yogourt and milk, fruit, beans, and coffee. It's basically the perfect diet. I eat 10x better than the average person, yet even a drug addict does not have any of my symptoms.
Cognitive Testing: I've done multiple Mensa ranked online IQ tests (Norway, Luxemburg, Denmark) + clinical Psychometric IQ test (online), both of which (supposedly) accurately correlate to in person testing, created by Mensa members and psychologists - My IQ is consistently around 110 to 130, SD 15. Variations are likely a result of 1) different tests 2) health issues affecting my thinking. Despite that, my depersonalization and brain fog make me forget repeatedly and I never feel "real". Everything is a blur. I forget what happened 3 seconds ago. I can NEVER concentrate. Ever. My attention does not exist. Driving down the same road feels "unfamiliar to me", even though I could draw it from memory, I feel "distant" from it, somehow.
WPM: My fastest typing score (on the computer/keyboard) was 91 words per minute (two finger typing), but I average 75 normally writing, so my processing speed seems... Great. Yet, my memory or recognition of memories is failing.
The worse symptoms are the ones that affect my cognitive health. I could live with IBS, urticaria, and insatiable hunger... but the cognitive issues are destroying my life.
______________________________________________________________________________________________________________________________________________________________________________________
TL;DR: I don't know what to do anymore... I have a $10,000 budget for my health and don't know what other tests or therapies to try... My life is spiraling down, I cannot live like this anymore, suffering day to day for years, please someone recommend something; anything new for me to try.
I'm a desperate man. Being at rock bottom is a compliment.