Philomath
Member
To make a long story short - about this time in 2019 I had surgery to remove a mucoepidermoid carcinoma tumor from my parotid salivary gland. The ENT removed the whole gland, some lymph nodes and added a fat graft where the gland used to reside. I also had some radiation treatments as well.
In January of this year, the side of my face where I had the surgery became "paralyzed" - specifically, my lower eyelid, cheek, mouth and some neck muscles stopped working properly. I thought it may have something to do with Covid (I had OTC covid test come back positive on Christmas day) which I thought may be a temporary side effect.
A couple months later I ended up getting a MRI and visited a Neuro Ophthalmologist (for the palsy) The neuro doc said everything looked fine except for the MRI showed the fat graft as "Lit Up" showing signs of metastasis... it looked to me like the fat graft was lit up. So either the fat graft was "consumed" by the cancer, or the contrast (gadolinium I believe) can make fat show up as white. As far as my partial palsy, I thought initially maybe it was covid, or an issue with scar tissue, but maybe it is a growing tumor now.
Either way, I'm making an appointment with an ENT at a well regarded teaching hospital in the area. I'm sure I wont get in right away so I figure I have a couple weeks to try my own therapy.
Here is what I have begun:
1. Low Methionine diet / or 1.5g niacinamide / high BCAA's
2. 12 mg Cyproheptadine daily (working up to that)
3. Cascara Sagrada (emodin)
3. Inhibition of SFA through Niacinamide, Aspirin and Vitamin E
4. Progesterone/DHEA (cortinon)
So each of these methods I've read about here on the forum - thanks to @haidut for posting most of these studies. What I need help with is dosing. The Niacinamide, aspirin and Cypro were outline in the various posts, but I questions about the others. How much Vit E, BCAA's and Cortinon would be beneficial, and I have cascara - should I get a stronger emodin product - like Emodin, beta-lapachone, pau-darco, Vit K Methylene Blue or panquinone or Lapodin, CoQ10 or Quinine? And what's a good dose?
What about pregnenolone, RU486/Mifepristone, Doxycycline, Acetazolamide/B1 and fenbendazol? And is Vitamin E good for treating cancer or is it counter-productive?
Any suggestions on dosing or other ideas in general would be greatly appreciated. Thank you
@Blossom @Rinse & rePeat @charlie @Inaut @burtlancast @Heroico
In January of this year, the side of my face where I had the surgery became "paralyzed" - specifically, my lower eyelid, cheek, mouth and some neck muscles stopped working properly. I thought it may have something to do with Covid (I had OTC covid test come back positive on Christmas day) which I thought may be a temporary side effect.
A couple months later I ended up getting a MRI and visited a Neuro Ophthalmologist (for the palsy) The neuro doc said everything looked fine except for the MRI showed the fat graft as "Lit Up" showing signs of metastasis... it looked to me like the fat graft was lit up. So either the fat graft was "consumed" by the cancer, or the contrast (gadolinium I believe) can make fat show up as white. As far as my partial palsy, I thought initially maybe it was covid, or an issue with scar tissue, but maybe it is a growing tumor now.
Either way, I'm making an appointment with an ENT at a well regarded teaching hospital in the area. I'm sure I wont get in right away so I figure I have a couple weeks to try my own therapy.
Here is what I have begun:
1. Low Methionine diet / or 1.5g niacinamide / high BCAA's
2. 12 mg Cyproheptadine daily (working up to that)
3. Cascara Sagrada (emodin)
3. Inhibition of SFA through Niacinamide, Aspirin and Vitamin E
4. Progesterone/DHEA (cortinon)
So each of these methods I've read about here on the forum - thanks to @haidut for posting most of these studies. What I need help with is dosing. The Niacinamide, aspirin and Cypro were outline in the various posts, but I questions about the others. How much Vit E, BCAA's and Cortinon would be beneficial, and I have cascara - should I get a stronger emodin product - like Emodin, beta-lapachone, pau-darco, Vit K Methylene Blue or panquinone or Lapodin, CoQ10 or Quinine? And what's a good dose?
What about pregnenolone, RU486/Mifepristone, Doxycycline, Acetazolamide/B1 and fenbendazol? And is Vitamin E good for treating cancer or is it counter-productive?
Any suggestions on dosing or other ideas in general would be greatly appreciated. Thank you
@Blossom @Rinse & rePeat @charlie @Inaut @burtlancast @Heroico