nervepain2021
Member
- Joined
- May 11, 2021
- Messages
- 38
New to this forum and so grateful for all the positive changes I have experienced since adopting more metabolically supportive foods. Had some hiccups along the way, but labs just pulled and all thyroid markers are in the best ranges they have been in years, T4 is just flagged as slightly high so will be watching that. In trying other types of 'healthy' eating for years, never saw this sort of progress.
Now to my issue and plea for help. Sorry for the long post in advance. In March I had a root canal'd tooth extracted (never should have done the root canal but a holistic dentist convinced me to give it a try, 2 weeks later the pain was worse and it was pulled). The tooth had been a problem tooth (pre molar) for years...cavity close to the root, crown, and eventually bought 5+ years of pushing off root canal advice before the cold sensitivity turned to throbbing.
Upon extraction, dentist found an infection in my jaw bone. Who's to say if it was there pre-root canal or not, but I feel like he would have mentioned it. He cleaned all the infected tissue/scraped out - and put in a bone graft & membrane. The next month was hell, pain never decreased, surrounding teeth started bleeding gums, tongue looked terrible from the start. Went on antibiotics for 8 days, after which I could tolerate discomfort without pain pills. But still the new gums felt off. I kept going in weekly, dentist said it was healing fine - gave ozone treatments. Then I developed oral thrush, went on diflucan and Nystatin rinse. Got somewhat better, developed an achiness in my upper and lower palates and gum areas behind top and bottom 4-6 teeth. Eventually I ditched the Nystatin and thrush cleared up with baking soda and propolis extract. Achiness did not go away. I was on 800 mg advil every 6 hours for nearly the full month, no other pain meds or prescription stuff seemed to work for me.
At the 1 month check up, dentist said if I was still in pain - he had to cut the extraction site open. Upon cutting it, there was NO BONE GRAFT! It 'did not take' as he said - he said this never happens. He scraped out the granulated gum tissue and few pieces of bone graft particles and basically treated me for dry socket. Two days were painful, but after that the site did not throb any more. Gums still ached, so he suspected Burning Mouth Syndrome and said it's neurological. Treated me with twice weekly ozone injections.
So here I am, 2 months in with a 3 week healing extraction site (that will prob have to be re-grafted at some point), and either Burning Mouth Syndrome or a lingering oral infection (but no sign of thrush). A functional doctor suspects that a biofilm got created from the infected cyst in my jaw bone when he did the initial extraction, and surround the bone graft compromising it. Beyond the aching pain (which gets worse after lunch and can be up to a 7/10 in the evening), I also stopped sleeping (have had a bout of insomnia back in 2016- found out I had candida overgrowth and worked through that, so perhaps Candida was triggered again in this case with the oral thrush - thought an oral swab did not confirm candida). I have had panic attacks, and every 3'ish days I break down crying (try not to in front of my kids, but sometimes it just happens). I am on 1 mg Ativan before bed, .5 mg Ativan in the morning and now trying Gabapentin (200 mg twice a day). There seems to be some decrease of pain with the Gaba but it's not consistent and I suspect I prob will have to titrate up - so I prob will need to either just embrace the pain meds again or suffer through, and i'm just worn out.
I meet with a few specialists (dental, hormonal, etc) over the next few months to see if they can figure out what this is (Burning Mouth or something else), I get my hormone labs done next week - to see if there is a correlation with prog/estrogen etc (I have had low progesterone in the past, delivered my son preemie - tried bio identical progesterone at some pt but didn't feel anything but grogginess - prob wrong dose and doctor). Functional dr said she'll eval the labs and then we can talk about progesterone, pregnenolone, DHEA etc.
Has anyone gone through something called Burning Mouth or anything like this before? I know I still need to be patient to really identify if it is burning mouth (b/c my tongue does not burn, which seems to be the typical presentation), but the pain is terrible and I'm wondering if it is hormone related, virus related, both or something else. I did read that dissolving klonopin and then swishing and spitting it out can help, but already being on one benzo which I hope to wean off of sooner than later is prob enough at this stage.
I am also taking L-Theanine, Systemic Enzymes, Vit E, B Complex (for the thrush, will prob switch to Niacinamide once the bottle is empty), some anti-fungals for candida (oregano, caprylic), Mag Glycinate and carbonate, plus some herbs from the accupuncturist (during treatment my pain goes down to a 2).
Having lots of raw dairy (goat & cow), vit c/fruits, 1 starch a day, grass fed beef, lamb, eggs, bone broth, salting foods, adrenal cocktails etc. Did Josh & Jeanne's course earlier this year and I def see the positive impact on my thyroid labs. I am a 40 year old woman, work full time, married to an amazing husband and have 2 kids (ages 6 and 8).
Thank you for anyone out there who may have experienced this and be on the other side of it. My functional doc had 2 patients and said it took months, one was able to mask her pain with Gabapentin, the other just tried things until it went away. I hope mine will also pass, I'm just on 3 months of pretty severe pain and feeling depleted. Meanwhile i'll keep looking at what's already on this forum - doc also mentioned Low Dose Naltrexone, and other options...but i know with all of these are side effects, including hormones. *sigh*
Now to my issue and plea for help. Sorry for the long post in advance. In March I had a root canal'd tooth extracted (never should have done the root canal but a holistic dentist convinced me to give it a try, 2 weeks later the pain was worse and it was pulled). The tooth had been a problem tooth (pre molar) for years...cavity close to the root, crown, and eventually bought 5+ years of pushing off root canal advice before the cold sensitivity turned to throbbing.
Upon extraction, dentist found an infection in my jaw bone. Who's to say if it was there pre-root canal or not, but I feel like he would have mentioned it. He cleaned all the infected tissue/scraped out - and put in a bone graft & membrane. The next month was hell, pain never decreased, surrounding teeth started bleeding gums, tongue looked terrible from the start. Went on antibiotics for 8 days, after which I could tolerate discomfort without pain pills. But still the new gums felt off. I kept going in weekly, dentist said it was healing fine - gave ozone treatments. Then I developed oral thrush, went on diflucan and Nystatin rinse. Got somewhat better, developed an achiness in my upper and lower palates and gum areas behind top and bottom 4-6 teeth. Eventually I ditched the Nystatin and thrush cleared up with baking soda and propolis extract. Achiness did not go away. I was on 800 mg advil every 6 hours for nearly the full month, no other pain meds or prescription stuff seemed to work for me.
At the 1 month check up, dentist said if I was still in pain - he had to cut the extraction site open. Upon cutting it, there was NO BONE GRAFT! It 'did not take' as he said - he said this never happens. He scraped out the granulated gum tissue and few pieces of bone graft particles and basically treated me for dry socket. Two days were painful, but after that the site did not throb any more. Gums still ached, so he suspected Burning Mouth Syndrome and said it's neurological. Treated me with twice weekly ozone injections.
So here I am, 2 months in with a 3 week healing extraction site (that will prob have to be re-grafted at some point), and either Burning Mouth Syndrome or a lingering oral infection (but no sign of thrush). A functional doctor suspects that a biofilm got created from the infected cyst in my jaw bone when he did the initial extraction, and surround the bone graft compromising it. Beyond the aching pain (which gets worse after lunch and can be up to a 7/10 in the evening), I also stopped sleeping (have had a bout of insomnia back in 2016- found out I had candida overgrowth and worked through that, so perhaps Candida was triggered again in this case with the oral thrush - thought an oral swab did not confirm candida). I have had panic attacks, and every 3'ish days I break down crying (try not to in front of my kids, but sometimes it just happens). I am on 1 mg Ativan before bed, .5 mg Ativan in the morning and now trying Gabapentin (200 mg twice a day). There seems to be some decrease of pain with the Gaba but it's not consistent and I suspect I prob will have to titrate up - so I prob will need to either just embrace the pain meds again or suffer through, and i'm just worn out.
I meet with a few specialists (dental, hormonal, etc) over the next few months to see if they can figure out what this is (Burning Mouth or something else), I get my hormone labs done next week - to see if there is a correlation with prog/estrogen etc (I have had low progesterone in the past, delivered my son preemie - tried bio identical progesterone at some pt but didn't feel anything but grogginess - prob wrong dose and doctor). Functional dr said she'll eval the labs and then we can talk about progesterone, pregnenolone, DHEA etc.
Has anyone gone through something called Burning Mouth or anything like this before? I know I still need to be patient to really identify if it is burning mouth (b/c my tongue does not burn, which seems to be the typical presentation), but the pain is terrible and I'm wondering if it is hormone related, virus related, both or something else. I did read that dissolving klonopin and then swishing and spitting it out can help, but already being on one benzo which I hope to wean off of sooner than later is prob enough at this stage.
I am also taking L-Theanine, Systemic Enzymes, Vit E, B Complex (for the thrush, will prob switch to Niacinamide once the bottle is empty), some anti-fungals for candida (oregano, caprylic), Mag Glycinate and carbonate, plus some herbs from the accupuncturist (during treatment my pain goes down to a 2).
Having lots of raw dairy (goat & cow), vit c/fruits, 1 starch a day, grass fed beef, lamb, eggs, bone broth, salting foods, adrenal cocktails etc. Did Josh & Jeanne's course earlier this year and I def see the positive impact on my thyroid labs. I am a 40 year old woman, work full time, married to an amazing husband and have 2 kids (ages 6 and 8).
Thank you for anyone out there who may have experienced this and be on the other side of it. My functional doc had 2 patients and said it took months, one was able to mask her pain with Gabapentin, the other just tried things until it went away. I hope mine will also pass, I'm just on 3 months of pretty severe pain and feeling depleted. Meanwhile i'll keep looking at what's already on this forum - doc also mentioned Low Dose Naltrexone, and other options...but i know with all of these are side effects, including hormones. *sigh*