Asya_D
Member
- Joined
- Nov 3, 2020
- Messages
- 33
Hello! I'm so excited to find this forum, and Georgi, thank you so much for all your amazing work.
I would like to share a little story about my husband and ask your recommendation.
My husband is an ex-marine, workaholic, studied at GAtech and worked 2 jobs and kept drinking coffee on empty stomach and eating junk food. Subsequently, he developed Ulcerative Colitis in 2011, and the doctors were able to put him into the remission with sulfasalazine and prednisone (PS. He only met me in 2013 after he graduated and I fed him right :)
Throughout the years he was on and off the flare, we saw from "Star GI doctors" to VA doctors, tried all sorts of medication: Humira, Remicade, Entyvio.. he always developed antibodies, and then just stopped responding to medications.
2 years ago my husband's GI doctor said he can no longer help him. He wasn't responding to any medication, and prednisone wasn't an option anymore. The doctor said: the surgery (colectomy) was the only way for him to start living a normal life.
My husband had a surgical consultation and was ready to set the date for the surgery.
After doing extensive reading on colon, microbiota, and the immune system to the best of my ability at that time - I asked him to hold off the surgery. I asked him to try every other alternative treatment option and only after failing them - go for the surgery.
I offered to try FMT (Fecal microbiota transplantation), but unfortunately (in this case), he didn't have C.Diff, so we couldn't do in the States, and we were too chicken to try it ourselves.
At that time, my husband's weight was about 120 pounds (5"10 height), he was running to the bathroom 20 times a day, bleeding, hurting, and he wasn't able to sleep through the night. His colon was severely and entirely inflamed.
After doing more search, I only found a few places in the world which perform FMT - Buenos Aires and Sao Paulo! But a friend of mine suggested looking in Russia (I'm from Moscow), and I've found a hospital in Moscow that does experimental FMT procedures.
Long story short, we were in Russia and my husband went through 10 sessions of FMT procedure along with the medication and diet adjustments. His Russian doctor insisted that he gave up gluten, sugar, and nightshade vegetables - the doctor said, autoimmune diseases and these food items are just not compatible. But most of all, he told him to reconsider the connection between his thoughts/mind and the body. It sounds so simple, but it was a sort of revelation for my husband at that point. I don't know what exactly helped, but he got slowly better.
Fast-forward to the present time:
My husband is currently 140 pounds, sleeps through the night, has almost regular bowel movements like normal human.
He follows a gluten free and nightshade free diet and mostly sugar free.
He is almost off his medications except for 1 pills of Mesalamine, he even stopped taking imuran.
Based on my limited knowledge, I give him a cocktail of: NAC, L-glutamine before breakfast; Vitamin D + K, CoQ10 with PQQ, Omega 3 and Mesalamine 1 pill after breakfast.
Occasionally, I give him Sodium Ascorbate, vitamin A, Methyl Folate.
He notices how his stress affects his body: tension in the stomach, tension in the mind, thoughts. He immediately tends to his needs and wants now, changes his pattern and that makes the whole difference.
It seems this regimen is keeping him in remission. Is there anything I should take into consideration? I'm waiting for hubbie to get new bloodwork to see if he has any deficits.
I'm looking at MitoLipin - Liquid Saturated Phosphatidylcholine (PC) Mix to purchase, it seems it fits to his needs and condition. Am I in the right direction?
I would like to share a little story about my husband and ask your recommendation.
My husband is an ex-marine, workaholic, studied at GAtech and worked 2 jobs and kept drinking coffee on empty stomach and eating junk food. Subsequently, he developed Ulcerative Colitis in 2011, and the doctors were able to put him into the remission with sulfasalazine and prednisone (PS. He only met me in 2013 after he graduated and I fed him right :)
Throughout the years he was on and off the flare, we saw from "Star GI doctors" to VA doctors, tried all sorts of medication: Humira, Remicade, Entyvio.. he always developed antibodies, and then just stopped responding to medications.
2 years ago my husband's GI doctor said he can no longer help him. He wasn't responding to any medication, and prednisone wasn't an option anymore. The doctor said: the surgery (colectomy) was the only way for him to start living a normal life.
My husband had a surgical consultation and was ready to set the date for the surgery.
After doing extensive reading on colon, microbiota, and the immune system to the best of my ability at that time - I asked him to hold off the surgery. I asked him to try every other alternative treatment option and only after failing them - go for the surgery.
I offered to try FMT (Fecal microbiota transplantation), but unfortunately (in this case), he didn't have C.Diff, so we couldn't do in the States, and we were too chicken to try it ourselves.
At that time, my husband's weight was about 120 pounds (5"10 height), he was running to the bathroom 20 times a day, bleeding, hurting, and he wasn't able to sleep through the night. His colon was severely and entirely inflamed.
After doing more search, I only found a few places in the world which perform FMT - Buenos Aires and Sao Paulo! But a friend of mine suggested looking in Russia (I'm from Moscow), and I've found a hospital in Moscow that does experimental FMT procedures.
Long story short, we were in Russia and my husband went through 10 sessions of FMT procedure along with the medication and diet adjustments. His Russian doctor insisted that he gave up gluten, sugar, and nightshade vegetables - the doctor said, autoimmune diseases and these food items are just not compatible. But most of all, he told him to reconsider the connection between his thoughts/mind and the body. It sounds so simple, but it was a sort of revelation for my husband at that point. I don't know what exactly helped, but he got slowly better.
Fast-forward to the present time:
My husband is currently 140 pounds, sleeps through the night, has almost regular bowel movements like normal human.
He follows a gluten free and nightshade free diet and mostly sugar free.
He is almost off his medications except for 1 pills of Mesalamine, he even stopped taking imuran.
Based on my limited knowledge, I give him a cocktail of: NAC, L-glutamine before breakfast; Vitamin D + K, CoQ10 with PQQ, Omega 3 and Mesalamine 1 pill after breakfast.
Occasionally, I give him Sodium Ascorbate, vitamin A, Methyl Folate.
He notices how his stress affects his body: tension in the stomach, tension in the mind, thoughts. He immediately tends to his needs and wants now, changes his pattern and that makes the whole difference.
It seems this regimen is keeping him in remission. Is there anything I should take into consideration? I'm waiting for hubbie to get new bloodwork to see if he has any deficits.
I'm looking at MitoLipin - Liquid Saturated Phosphatidylcholine (PC) Mix to purchase, it seems it fits to his needs and condition. Am I in the right direction?