DaveFoster
Member
I'm 19 years old, and I've dealt with autism, anxiety, and depression my whole life. I've cut out PUFA's the past year, and I plan to continue doing so (under 4 grams/day until I die.) My diet consists of milk, sugar, coffee, OJ, potatoes, coconut oil, chocolate, salt/baking soda, occasional shellfish (shrimp, mussels, clams), along with daily oysters and liver. Supplements include a baby aspirin, liberal caffeine (coffee), methylene blue (250 mcg/day), K2 (5 mg/day), vitamin E (400 IU/day), occasional B-vitamins via haidut's Energin (30 drops), occasional Lapodin, and Pansterone (DHEA and pregnenolone 2-5 mg/day each).
I've recently been dealing with mild fibromyalgia symptoms, along with the IBS symptoms I've suffered from my whole life. I used smaller doses of tetracycline (50 mg) with positive effects. My doctor placed me on a 10-day course of amoxicillin and clavunic acid; this resulted in diarrhea and an initial increase in feelings of well-being. By day 7, I started to experience some severe regression of symptoms. Post-antibiotics, along with some potato starch, I now have full-blown fibromyalgia, chronic fatigue syndrome, arthritic pains in my joints, excessive body hair, acne breakouts, swollen throat, migraines and absolute apathy about it all. It happened directly after the 10-day antibiotic course. Labs reveal elevated AST and ALT enzymes (slightly) and high reverse-T3. My thyroid supplementation focuses on a high ratio of T3:T4 (3:1 - 2:1). My pulse is between 60-70: a new development after the amoxicillin.
I e-mailed Ray Peat before the amoxicillin; he recommended thyroid and an antibiotic. Thyroid helped, amoxicillin did not. I recently contacted Ray Medina, writer of gutcritters.com. He extensively researches the impact of the microbiome on human health, and since Peat recommended the carrot salad and flowers of sulfur (which I did both, and which still did not work), I'm going to the probiotic route.
Here's what Ray Medina replied to me in an e-mail:
The two highest quality probiotics I can find are the following:
Please open the discussion, and for the love of God please share any advice.
I've recently been dealing with mild fibromyalgia symptoms, along with the IBS symptoms I've suffered from my whole life. I used smaller doses of tetracycline (50 mg) with positive effects. My doctor placed me on a 10-day course of amoxicillin and clavunic acid; this resulted in diarrhea and an initial increase in feelings of well-being. By day 7, I started to experience some severe regression of symptoms. Post-antibiotics, along with some potato starch, I now have full-blown fibromyalgia, chronic fatigue syndrome, arthritic pains in my joints, excessive body hair, acne breakouts, swollen throat, migraines and absolute apathy about it all. It happened directly after the 10-day antibiotic course. Labs reveal elevated AST and ALT enzymes (slightly) and high reverse-T3. My thyroid supplementation focuses on a high ratio of T3:T4 (3:1 - 2:1). My pulse is between 60-70: a new development after the amoxicillin.
I e-mailed Ray Peat before the amoxicillin; he recommended thyroid and an antibiotic. Thyroid helped, amoxicillin did not. I recently contacted Ray Medina, writer of gutcritters.com. He extensively researches the impact of the microbiome on human health, and since Peat recommended the carrot salad and flowers of sulfur (which I did both, and which still did not work), I'm going to the probiotic route.
Here's what Ray Medina replied to me in an e-mail:
Hi Dave,
Like so many of us, you likely inherited a disordered gut flora from your mother. In this age of antibiotic overuse and caesarean births, it’s sadly the norm.
I don’t have specific FOS prebiotic recommendation. There are several on the market you can try. I would just do an Amazon search and see what comes up. As for probiotics, I currently recommend this one: Dr. Ohhira Probiotics | On Sale | Probiotics Supplements | Probiotic Soap | Probiotics Oils | Buy Probiotics From Dr. Ohhira Probiotics
Keep in mind that I wouldn’t start off with the prebiotic until after your gas and bloating symptoms have subsided. Any fiber, soluble or insoluble, can be very hard to take when battling IBS. That is why prebiotics are on the FODMAP list of prohibited foods. Once things normalize, begin introducing a small amount of prebiotic fiber to your diet. I take mine in my morning coffee just once a day.
I can only assume that you are already on a gluten-free diet. If not, please consider it. I wrote about the connection between gluten consumption and fibromyalgia here: Fibromyalgia And Non-Celiac Gluten Sensitivity | Gut Critters
Best regards and good luck,
Ray
Gut Critters
My reply:Like so many of us, you likely inherited a disordered gut flora from your mother. In this age of antibiotic overuse and caesarean births, it’s sadly the norm.
I don’t have specific FOS prebiotic recommendation. There are several on the market you can try. I would just do an Amazon search and see what comes up. As for probiotics, I currently recommend this one: Dr. Ohhira Probiotics | On Sale | Probiotics Supplements | Probiotic Soap | Probiotics Oils | Buy Probiotics From Dr. Ohhira Probiotics
Keep in mind that I wouldn’t start off with the prebiotic until after your gas and bloating symptoms have subsided. Any fiber, soluble or insoluble, can be very hard to take when battling IBS. That is why prebiotics are on the FODMAP list of prohibited foods. Once things normalize, begin introducing a small amount of prebiotic fiber to your diet. I take mine in my morning coffee just once a day.
I can only assume that you are already on a gluten-free diet. If not, please consider it. I wrote about the connection between gluten consumption and fibromyalgia here: Fibromyalgia And Non-Celiac Gluten Sensitivity | Gut Critters
Best regards and good luck,
Ray
Gut Critters
Dear Ray,
Thank you so much for your insight. I've ordered the probiotic that you recommended, and also this as a prebiotic, as it's the top-rated: Dr. Tobias Ultimate Prebiotic - The Perfect Complement & Boost For Every Probiotics Supplement
I'm going to barter with my doctor to get a 14-day course of Xifaxan, and then start both of the aforementioned for 30 days, along with eating plenty of potato resistant starch.
A couple questions; should one take the probiotic or prebiotic during the antibiotic treatment along with afterward?
Also, do you personally take probiotics or just prebiotics daily indefinitely?
Best regards,
Dave
His reply:Thank you so much for your insight. I've ordered the probiotic that you recommended, and also this as a prebiotic, as it's the top-rated: Dr. Tobias Ultimate Prebiotic - The Perfect Complement & Boost For Every Probiotics Supplement
I'm going to barter with my doctor to get a 14-day course of Xifaxan, and then start both of the aforementioned for 30 days, along with eating plenty of potato resistant starch.
A couple questions; should one take the probiotic or prebiotic during the antibiotic treatment along with afterward?
Also, do you personally take probiotics or just prebiotics daily indefinitely?
Best regards,
Dave
Hi Dave,
Yes, I would take the probiotic during antibiotic treatment. (Not the prebiotic. But if you don’t suffer from any gas or bloating issues than you can take the prebiotic as well.) Just take your probiotic away from your antibiotic. Say the antibiotic is to be taken every 8 hours, take the probiotic at the four hour mark between doses.
I take probiotics and prebiotics every single day and will do so until I expire.
Best regards,
Ray
Dr. Ohira's probiotic contains carrageenan, which is not ideal. Anecdotally, I hear "the more strains, the better," from countless reviews of probiotics. People who have tried more strains have better results than those who try a few strains. So, a 15+ strain probiotic seems ideal. Unfortunately, these probiotics have excipients.Yes, I would take the probiotic during antibiotic treatment. (Not the prebiotic. But if you don’t suffer from any gas or bloating issues than you can take the prebiotic as well.) Just take your probiotic away from your antibiotic. Say the antibiotic is to be taken every 8 hours, take the probiotic at the four hour mark between doses.
I take probiotics and prebiotics every single day and will do so until I expire.
Best regards,
Ray
The two highest quality probiotics I can find are the following:
11 Strain Probiotic Powder
(They also have a bifidobacterium-only product, which has been favorably mentioned on this forum.)
GutPro™ Custom Probiotic - Organic 3, Inc.
These only have 11 and 8 strains respectively.(They also have a bifidobacterium-only product, which has been favorably mentioned on this forum.)
GutPro™ Custom Probiotic - Organic 3, Inc.
Please open the discussion, and for the love of God please share any advice.
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